melina is writing

I’m still getting the hang of wordpress, who knew starting up a blog could be so hard. Or maybe I’m making it complicated! I would love my page to look neater and prettier but i’m basically only two days in and im lucky to barely remember or to stay consistant.

today feels like i’m having another battle with my insurance. My amazing mother has always helped me with anything that involves my health and recently I lost my healthcare and was required to reapply. I was denied due to making to much money… as someone who works in a customer service job I don’t think I can agree with that statement but I digress. This happened last year and due to this I had to pay for some important medication out of pocket.

I have epilepsy and have reoccurring seizures. Even one day without my medicine would not be good. I cant drive due to this. I got a VNS over a year ago to help with my seizures and personally want to say that it has really done good. I used to get one seizure every night and now i get one or two every week. Ive realized they are similar to what are called “auras” I can feel before they happen and i need to sit or lay down while they happen for a few seconds.

When I was little before I was diagnosed my left hand would raise up on its own as if someone was lifting it up. I cant quite remember how it felt but i just remember trying to brush it off as if I was doing it on purpose during class.

I don’t remember how many days or weeks after I had a full on seizure in a different classroom I had never been in while I was running errands because I was in student council. I remember going down, hitting my head on a fire hydrant and then waking up at the nurses office.

My mom always talked about how the doctors told her that it was going to be a long road ahead of us because epilepsy was very hard to diagnose but I was very lucky to get a quick one because I had another full on seizer after I had just gone to the bathroom at the hospital post-firehydrant smash.

I think this was 3rd or 4th grade so 10-years-old? and just turned … 25 omg im old.

I was seizure free for many years until I wanted to lower my dosage and try to go off my medication. I was still with my peds neuro. There were many reasons for that decision. Some that I don’t think I’ve said out loud.

I was tired of so much medication every single day, it felt like it was consuming my life. I think my depression was at the highest at this point in my life but I was also confident that I thought it was time… spoiler it wasn’t.

My timeline is so fuzzy but after i went down in medication that medication just stopped working in general and I began to try new meds, Then I out aged my ped neuro I tried and when I met new regular neurologist is when I finally was getting somewhere. I was finally getting the right cocktail, for lack of better words.

Now its only up from here. I really want to thank my mom she always rallied for her children not just me but my brother and sisters.

Ill talk about the new episode of Jujutsu kaisen tomorrow LOL